What is GINA?

In May 2008, President Bush signed the Genetic Information Nondiscrimination Act (GINA) into law. GINA will protect Americans against discrimination based on their genetic information when it comes to health insurance and employment. In this podcast, we discuss the ins and outs of GINA with Emmelyn Kim, MA, MPH.

Relevant Information:

North Shore LIJ Office of Research Compliance
http://www.northshorelij.com/body.cfm?id=2609&oTopID=2609&PLinkID=5096

Lanman, R.B. (2005). An analysis of the adequacy of current law in protecting against genetic discrimination in health insurance and employment; A report commissioned by the Secretary’s Advisory Committee on Genetics, Health
and Society. 1-23. Accessed October 17, 2008 http://www4.od.nih.gov/oba/sacghs/reports/legal_analysis_May2005.pdf

Van Hoyweghen, I & Horstman, (2008) K. European practices of genetic information and insurance: lessons for the genetic information nondiscrimination act. JAMA. Jul 16;300(3):3267

Genome.gov
http://www.genome.gov/24519851

Wikipedia: Genetic Information Nondiscrimination Act
http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimination_Act

Hall, MA and Rich SS. (2000) Laws restricting health insurers’ use of genetic information: Impact on genetic discrimination. Am. J. Hum. Genet. 66:293-307

Council for Responsible Genetics
http://www.gene-watch.org/programs/privacy/genetic-disc-position.html

Genetics and Public Policy Center
http://www.dnapolicy.org/resources/WhatGINAdoesanddoesnotdochart.pdf

New York Times May 5, 2008: Mapping the Human ‘DISEASOME’http://www.nytimes.com/interactive/2008/05/05/science/20080506_DISEASE.html

National Conference of State Legislatures
http://www.ncsl.org

Human Genome Project Information
http://www.ornl.gov/sci/techresources/Human_Genome/elsi/legislat.shtml

Nature.com
http://www.nature.com/news/2008/080430//full/453009a.html

Read Emmelyn Kim’s BLOG which examines the complex
relationship of art and public health issues.